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Top 10 Search Results for "no expiration date"

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Stroke? After 8 Years On Revlimid
A MyMyelomaTeam Member asked a question 💭

Has anyone else encountered this? Did you stay with Revlimid?

A MyMyelomaTeam Member

I am also on Revlimid and Eliquis and had clots about a year and a half ago they seemed to have gone I haven’t had any more issues since being on Eliquis

Deciding If I Should Opt For Stem Cell Replacement. Local Oncologist/hematologist Is Recommending No. Specialist Says I Can. Thoughts?
A MyMyelomaTeam Member asked a question 💭

77 yrs old, relatively good physical condition. 2 weeks into my 3rd cycle of Velcade and Darzalex. KAPPA/LAMBDA LIGHT CHAIN RATIO has gone from 4.42 to 2.07 in 3 months. Abnormal protein band has reduced from 1.3 to .3. Fatigue and Bone pain have subsided. Walking daily.

A MyMyelomaTeam Member

I say go for it! It’s the best way to get as close to a cure that is available. “I” don’t qualify. My cardiologist said my heart would not take it. When I had Revlimid and then Velcade they toxified… read more

What Is The Typical Life Span Of Someone With Multiple Myeloma Cancer....
A MyMyelomaTeam Member asked a question 💭

I was diagnosed with Multiple Myeloma Cancer 2 years ago at the age of 38. Does anyone know the life span of someone my age with Multiple Myeloma?

A MyMyelomaTeam Member

Thank u so much!!!! My social worker doesn’t seem to be doing much or even know much

Chemo Between Harvesting And SCT?
A MyMyelomaTeam Member asked a question 💭

I made my harvesting and I'm wainting for date for SCT. Probably there will be a month or more waiting time. Should I do 1 more cycle chemo in this time or no meds is better?

A MyMyelomaTeam Member

I agree: Eat hearty; and get some exercise. The stronger you are going in the better. Don't wear yourself out, of course. They will want you to walk each day during your hospital stay. You want to… read more

They Say I Have Smoldering Multiple Myeloma,I Have It Since 2016, What Next?? The Pain Is So Bad Now, I Had Cancer A Few Years Back,
A MyMyelomaTeam Member asked a question 💭

So confused, it took drs. 6 years to find anal cancer at a stage 4, how is this smoldering?

A MyMyelomaTeam Member

The 2 cancers are unrelated

Has Any One With Stage 1 Multiple Myeloma Had A Stem Cell Transplant? If Not, What Maintenance Program Are You On?
A MyMyelomaTeam Member asked a question 💭

I have Stage 1 multiple myeloma. I started treatment in January because of proteins in my urine. I am on Velcade, Revlimid and dexamethasone. I am on my 4th cycle. My understanding is that Revlimid will suppress stem cell production. So if down the road I may want a stem cell transplant my maintenance program would be the Velcade. I think the Revlimid might be a better option to for remission. I am wondering what others have found with your treatments.

A MyMyelomaTeam Member

Thanks for your response!! How long have you doing the 10 mg revlimid? Does it seem to be keeping your test levels where you want to be? I am doing pretty well. I have some fatigue and tingling in my… read more

Have Any Of You Had Treatment At MD Anderson?
A MyMyelomaTeam Member asked a question 💭

Our daughter has an appointment there next week and they said come to stay 2 or 3 days, but the weekend will be in the middle of that time. Curious how other people manage their stays there.

A MyMyelomaTeam Member

They agreed with the oncologist in Fort Worth on diagnosis and initial treatment. However, they ran a few more lab tests (some new and some repeated) and scheduled a marrow aspiration to determine… read more

Red Skin After Darzalex Faspro?
A MyMyelomaTeam Member asked a question 💭

Yesterday started my 5th cycle of the therapy. This is my second time with Darzalex FasPro /first 3 cycles were with infusions/. Last month there was no side effects. Yesterday they put me the injection and today My skin got red on the legs at the morning and now it's red on the chest and arms too. Is that normal, should I be worried and go to the hospital or wait till the morning?

A MyMyelomaTeam Member

Valeri,
Yay! I’m so happy it wasn’t worse. Thank God🙏🏻✝️💕 By sharing, you have probably helped someone else with this problem. Thank you🌈🌷🌺🪻🌼🌸
Paula🌹

Is Muliple Myeloma Still Incurable?
A MyMyelomaTeam Member asked a question 💭

How long can one stay in remission without treatment and is it advised to stay on something like revlimid for a type of maintenance strategy. I've been in remission since 2017. Im not on anything but constantly struggle with my hemoglobin and iron counts. Our friend on this myeloma team was a nurse and she was in remission for like 18 years then she gets struck with liver cancer. This was so sad.

A MyMyelomaTeam Member

Interesting so I had a less than 5% myeloma cells in my bone marrow aspiration at diagnosis I had one plasma cytoma that was removed, surgically and treated with radiation 300 gray for 10 cycles

My… read more

Because Bone Marrow Biopsy Is Soooo Painful, Why Haven’t Doctors Addressed This Issue?
A MyMyelomaTeam Member asked a question 💭

What about quality of life? I just had another BMB and it was just as painful as the first. The only good thing is that it latest for a few minutes instead of an hour. It seems that there is no norm when getting pain medicine for it.

A MyMyelomaTeam Member

I have also had a bone marrow biopsy with anesthesia and it was so much better.