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My Husband, Pop Stone, Is Having Severe Hand And Foot Cramps!! Suggestions For Relief????
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I know this will sound silly, but my husband also gets foot, leg cramps. A dill pickle, or the juice of a dill pickle eases his cramps in seconds. I don't know why. Definitely won't hurt to try.

I Am 72 And Was Diagnosed With Stage 2A MM In 6/19. Had RVD Chemo For 4 Mos. Which Brought Canc Cells From 70 To 30% In My Bone Marrow.
A MyMyelomaTeam Member asked a question 💭

Last 9 mos. treatments have been weekly with Velcade and steroids and Darzalex every 3rd week. My M-1 Spike protein has been pretty steady at 1.1 to 1.3. Still have some fatigue, weakness and get out of breath easily. I get XGEVA shots monthly. Bones (except lower back mainly from golf) are in good shape. Same as with kidneys. I’m not eligible for bone marrow transplant due to age
My 2 oncologist. Will soon discuss a possible different drug regimen and frequency change. But I get the… read more

A MyMyelomaTeam Member

I was 72 when I had my stem cell done. Everything went great. Ask your doctor again.
Carole

Diagnosed With Leukemia And Multiple Myeloma
A MyMyelomaTeam Member asked a question 💭

Had SCT 2/22 and leukemia is in remission, however multiple myeloma is not. Doctors at John Hopkins are taking a wait and see attitude because they say the myeloma hasn’t changed. I’ve lost about 90lbs and have no energy most days. My spleen is enlarged and the doctor says that’s what’s causing the weight loss. My appearance to me looks extremely frail. Appetite is good and I’m taking in a lot of protein but still no weight gain. Doctor says that he’s going to talk to the myeloma team and… read more

A MyMyelomaTeam Member

Hi Alan. Ask your doctor to check your blood sugar and thyroid as well. I pray your dr will take your concerns seriously and get to the root cause of your weight loss. Hugs

If You Are In Remission, Will The Cancer Continue To Affect Your Good Bones? Never Sure Why There Is Pain, NP Said Possibly Arthritis?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

That sounds good💕

Going Through The Hardships
A MyMyelomaTeam Member asked a question 💭

I am going for the C T Scan , PET Scan,Eye Cataract Extraction lens implantation,this May and this I got to get through the problem but l pray to God please help me to overcome the problem.🙏

A MyMyelomaTeam Member

@A MyMyelomaTeam Member Sending 🕊️🙏🫶🕯️

Are Chemo Infusions Every Other Week For High Risk Patients Necessary?
A MyMyelomaTeam Member asked a question 💭

I have had a stem cell transplant and been on maintenance therapy for 2 1/2 years. I have high risk MM with translocation 14;16. I have been MRD negative since the transplant. Will I need to stay on this treatment for as long as it works?

6 Facts About Myeloma Maintenance Therapy Read Article...
A MyMyelomaTeam Member

Carrie
How are you doing? Are you still on the same treatment? My Mom stopped driving all the way to Seattle and her MM Oncologist worked with the local hospital to give her the infusions. Is that… read more

Probiotics/prebiotics After Autologus SCT? YES Or NO?
A MyMyelomaTeam Member asked a question 💭

A GI specialist prescribed me e probiotic but all I've read is not ok to take it. I'm +36 day and still have nausea and diarrhea from time to time. I am worried it will get worse. What did your transplantation specialists say?

A MyMyelomaTeam Member

Valerie, you will need to run it by your transplant doctor first. They only wanted me to take children's probiotics cause my counts were still low

Strange Docs
A MyMyelomaTeam Member asked a question 💭

I just had my first follow up after my SCT in November with my local oncologist. He just yelled at me because the nurse didn’t go through my med list one by one. She asked if anything changed. No. I stupidly asked doc if he really felt I should be taking 2400 calcium daily with D3 if my calcium is 10 already. He screamed at me there’s nothing here about your calcium pills. Final answer was ‘ it says you’re taking 200 a day’. No clue why his report said that, but he had no answer for me. He has… read more

A MyMyelomaTeam Member

Agree

I Have Kappa Light Chain. After My SCT My Mspike Is Undetectable; However My Protein Electrophoreses Serum Is Abnormal
A MyMyelomaTeam Member asked a question 💭

My doctor says I'm not in remission; A lot of the tests are measured to gauge remission. I wonder if other doctors say you are in remission when Mspike is undetectable.

A MyMyelomaTeam Member

I agree with Amy. Maybe your doctor doesn't believe in remission. Just saying.

What Is Your Take On The Covid Vaccines And A Spike In Your Protein Level?
A MyMyelomaTeam Member asked a question 💭

Shipmates
I was in perfect health, well maybe a few pounds overweight. I never took any pills except for my migraines. No high blood pressure no high cholesterol, no history of cancer in my family. I’m the first. I had my blood tests done at my physical in November 2020. Everything was fine, no problem. March and April 2021, I received my Covid vaccines and in November, 2021, I was told I had way to much protein in my blood. I needed to go to an oncologist and was diagnosed with… read more

A MyMyelomaTeam Member

My first COVID vaccine caused a spike in my light chains, but it was temporary. I don't remember if my protein pattern was effected..