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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
3366 questions
Where Can I Get Information On How To Use This Site Most Efficiently?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Wow that’s awfully complicated just ask a question and see what answers you get and just play on this site and you will figure it out over time.

posted 9 hours ago
Why Am I Sooo Tired?
A MyMyelomaTeam Member asked a question 💭

Multiple myeloma for the last 9 years and have never been as tired as I have been for the last two weeks!

A MyMyelomaTeam Member

Fatigue is a common symptom in multiple myeloma, and it can be caused by several factors:

1. **Anemia**: About 60% to 70% of people with multiple myeloma have anemia at diagnosis. Anemia occurs when… read more

posted 10 hours ago
Has Any One With Stage 1 Multiple Myeloma Had A Stem Cell Transplant? If Not, What Maintenance Program Are You On?
A MyMyelomaTeam Member asked a question 💭

I have Stage 1 multiple myeloma. I started treatment in January because of proteins in my urine. I am on Velcade, Revlimid and dexamethasone. I am on my 4th cycle. My understanding is that Revlimid will suppress stem cell production. So if down the road I may want a stem cell transplant my maintenance program would be the Velcade. I think the Revlimid might be a better option to for remission. I am wondering what others have found with your treatments.

A MyMyelomaTeam Member

Thanks for your response!! How long have you doing the 10 mg revlimid? Does it seem to be keeping your test levels where you want to be? I am doing pretty well. I have some fatigue and tingling in my… read more

posted 14 hours ago
I Hear Talk Of Remission. What Exactly Doe Remission Look Like?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Mary, my husband is stable and has not relapsed. He has 0 m protein and is on 5 mg of revlimid. He is maybe more tired than someone else his age 67. He recently has his left knee replaced so he has… read more

posted 11 hours ago
Has Anyone Else Suffered From Severely Clogged Ears? I Get A Little Cold And My Ears Get So Clogged I Am Basically Deaf.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Yes, I have had a problem with this too. It can start affecting my balance. I wish I could find a home remedy that works but so far I haven't.

posted 17 hours ago
What Tips Do You Have To Help With Seasonal Allergies?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I use Allegra and montelukast. Stopped using Flonase because of nose bleeds. Now I use saline spray and that seems to help and no side effects.

posted 7 hours ago
Is Kidney Disease A Common Side Effect Of The Myeloma Drugs?
A MyMyelomaTeam Member asked a question 💭

I found out by accident that my doctors notes show me as having stage 3 kidney disease! No one ever mentioned this, and when I asked about it my doctor seemed to think it was no big deal!

A MyMyelomaTeam Member

One of my first specialists was a nephrologist and I was diagnosed with Stage 3. Sent to hematologist oncologist and was diagnosed with amyloidosis and multiple myeloma.

posted 7 hours ago
Need Help Correcting The Location To Where I Live
A MyMyelomaTeam Member asked a question 💭

Good morning ☀️ pray that everyone is well and off to a blessed and amazing day.
How do I correct the country and state for where I live? It’s incorrect. I’m from Maryland
Thanks ☺️

A MyMyelomaTeam Member

To change your location on the MyHealthTeam platform, please follow these steps:

1. **Access the Menu**: Click on the two lines at the top left of the page to open the menu
2. **Navigate to… read more

posted 24 hours ago
I Seem To Have A Bacterial Sinus Infection. What Antibiotics Are Generally Safe For Multiple-myeloma Patients? Are There Any Types To Avoid?
A MyMyelomaTeam Member asked a question 💭

Right now the only medication I'm taking for MM is the Darzalex Faspro and acyclovir. I want to make sure my PCP knows all he needs to know when it comes to prescribing an antibiotic for my case. Thank you if anyone can offer some advice.

A MyMyelomaTeam Member

I suppose asking my oncologist would be the logical person to ask.

posted 6 hours ago
GM. Wondering If Anyone Is Struggling With Pain? I Am 13 Weeks Into Chemo, Great Numbers And Preparing For Transplant. Taking Morphine.
A MyMyelomaTeam Member asked a question 💭

Newly diagnosed, December 1st 2023

A MyMyelomaTeam Member

Another option is to use hemp lotion from Amazon or Biofreeze products whether they are lotion or spray. I also purchased a velcro back brace for when my pain is more severe. Again, I got a great one… read more

posted 13 hours ago
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