"slow Disease Response?.
I have been taking Revlimid again the past two months again and have been on Darzalex for the past year. I have had slow progression of my kappa light chains for the past 5 months. Has anyone experienced this slow progression to the point where they stay on the Revlimid and Darzalex for a while longer and then eventually need to switch medications or try a different approach? Thank you for your experience, strength and hope.
I would ask about adding another drug. Progression, even if it is slow, to me indicates you need to add another drug. Three drug combinations have been shown to perform better than two drug combos.
Ask your doctor if your mm treatment is progressing as it should. Have a conversation with your doctor if the treatments are not progressing as they should.
Hi there,
I actually have more anxiety over Tom's labs than he doesπ£. He was diagnosed in 2016 and has been on ALL the following:
Velcade
Revlimid
Dex
Kyprolis
Darzalex
(the above also with Dex and Revlimid)
They all have quit working at some point, which is why we go to the next one(s), knowing it is the next best thing. And guess what? There has always been a next best thing π. Beside the meds, that next best thing for all of us is...HOPE. Clinical trials are producing fabulous new treatments. I know because Tom is in one currently. I will report later this week (he has a bone marrow biopsy tomorrow to hopefully collaborate his incredible news), but right now we can't find a trace of MM in his blood. It's almost unbelievable. So hang in there my friend - ALL of you- because hope is our best allyβ€οΈβ€οΈβ€οΈπππ
Hey Todd3, will you ask your myeloma specialist about Pomalyst? I take it with Darzalex faspro. I wasn't on Revlimid very long. It just didn't work on my myeloma. I just want you to know you are not alone in this battle. I get anxiety with my labs too. My specialist did tell me that they would try to get as much mileage out of my current treatment as possible. So maybe that's what your doctor is doing? I hope your numbers improve. Love and prayers Donna πππ₯°π
Thank you both. It is nice to have somewhere to go to discuss these matters. It is a tough disease because it is a smart cancer. I will be talking to my oncologist on Monday and seeing about next stapes, whether it be increasing the Revlimid or trying a new medication altogether. The anxiety and uncertainty is the hardest part. I just pray for some positive consistency in the near future. Thank you both again.
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