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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Will I Ever Have Any Energy?

Will I Ever Have Any Energy?

Fatigue rules. I can’t even get my house vacuumed every weekend. 😔 I can’t do what I used to do. If o don’t rest every weekend I won’t make it through the week. Any ideas or strategies to fix this?

posted November 22
A MyMyelomaTeam Member

My husband was extremely fatigued for 3 and a half cycles. He was taking his Rev in the morning. When he changed to 6pm, fatigue got significantly better. Also, he was stable on bp meds that were over correcting his bp. Getting his bp higher has helped relieve dizziness. Also, he is now getting B12 with his treatment. The end of the 4th cycle he is definitely more energetic.

posted November 24 (edited)
A MyMyelomaTeam Member

My husband has terrible fatigue. The other comments on switching to PM could give that a try. Rev makes him tired. And I agree need to find help and not try to do it all. I see that as a caregiver. You will do better when you can rest more.

posted 3 days ago
A MyMyelomaTeam Member

Sadly I am years into this and between the chemo the chronic kidney disease the MM I have to ration and choose what I can and can’t do. I am usually just getting by. I sure hope I can find a way to get more done.
Thanks for your kind words.

posted 4 days ago
A MyMyelomaTeam Member

I'm my husband's caregiver, and see there are so many things he can't do, doesn't have the energy, and I don't want him to get hurt. His job is to take care of, listen to his body, and rest whenever he feels. As the months go by in treatment, you should start to regain your energy, but it's slow and having patience and accepting that is key. He has tried to do vacuuming, and suffered the entire day from it. It's not worth it. And that movement hurts even a healthy person. I see the frustration of not having the energy to do things, and it breaks my heart. But it will return, and your "better" days will come as well.

posted 5 days ago
A MyMyelomaTeam Member

If its one thing I have learned its that everyone reacts differently. She is on Rev for maintenance, with others, and I am happy to say she is responding fantastically and is -MRD AND, has lots of energy. Shopping, cleaning, cooking, hasn’t seemed to skip a beat from before the diagnosis. I am happy for her, but sad for those not as fortunate. My heart goes out to all who suffer with this and other diseases. Hugs to all this Thanksgiving season.

posted 5 days ago

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