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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Medical Directives

Medical Directives

I am trying to figure out my thoughts about a medical directive. I’ve always supported Hospice and knowing just because we can, doesn’t mean we should. But Multiple Myeloma turns some of my prior thoughts upside down. I’m 54 and before I would have said no to a ventilator. With MM it’s not artificial means of prolonging life when there is no hope; but instead a treatment for pneumonia which we are susceptible to. Dialysis is commonly needed to clear our kidneys of proteins. So until I… read more

posted November 22
A MyMyelomaTeam Member

I am 77 so my perspective is a little different. I am giving them seven days to make an improvement through treatment. My wife elected to give the doctors just three days. We have both enjoyed a wonderful life and are ready for another transition.

posted November 23
A MyMyelomaTeam Member

A few months ago while being hospitalized I said no to a ventilator but once I got better and was able to go home from the hospital I told my daughter that I had changed my mind about not wanting to be put on a ventilator because I want to stay here as long as I can if it's the Lord's will.

posted November 22
A MyMyelomaTeam Member

I second jdbee02.
Don’t treat when there is no reasonable likelihood of improvement. Dialysis treatment gives improvement in quality of life. Don’t foget medical directives only are in effect IF you are unable to make decisions. Talk with family, even pay a lawyer to make sure you have peace of mind. I too am in my mid 50’s and prior to September of 2022 would have said I was in optimal health. Not a thing wrong with me. So being confronted with all this can be overwhelming no matter what, but to those that have no previous health issues it think it is a bit tougher since we have not had to take a look at end of life issues before.

posted November 22
A MyMyelomaTeam Member

I do have a DNR, and a MOST form.
When I broke my leg 4 years ago this coming Jan. They were shocked I had one.
Those directives DO NOT say don't treat.. it's just if irreversible. Don't.
Like a friend who had cardiac bypass. Wish she'd had one.
In hosp , on vent since July. That's existing.. not living.

I want to get back to a good quality of life.. not just live to lie in bed.
I've seen young pts after a car accident, who have no quality of life.
I know there's life after this.. let me go... BUT u must treat if there's a good chance of recovery.
Talk to yr family, friends, docs.. make an INFORMED decision.

posted November 22

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