Sorry I had too many characters and couldn't post. My transplant doctor was wonderful. All the doctors I saw wanted me to have the stem cell but he finally said to me. I have many that don't think they are ready and they still go through and do fine but you really don't seem like you feel you are not to do it at least at this time and I suggest that you don't. We did decide to harvest my stem cells because my numbers were so good and I was in remission or darn close to it. I'm still bloated off and on and just today started backup on treatment. It was so great not taking treatments and medication for 4 months. Felt like my ole self. My treatment now is the same as before Revlimid, Dex, Darz and Zometa once a month. I was on Velcade before but they do not have me on that now. I will pray for you but you have to make this decision. Weigh the pros and cons. In my case I could come up with a lot more cons and sometimes I thought maybe I was making excuses but I feel good about my decision. I pray to God every day and ask Him to find a cure for this horrible cancer. I pray those stem cells stay in the freezer forever but if my path is not that way they are there waiting for me to go that route. Don't let others judge you. I understand the doctors concern but if they are good doctors they will still be there for you 100% and treat you and watch over you and will respect your decision. Please keep us posted. Love you and God bless you!

A stem cell transplant is a very personal decision based upon your MM and so many life circumstances. While MM is treatable do not let it catch up to you , procrastinate, nor take it too lightly. Never give up, never quit, perservere. Listen carefully to your body , spirit ,and instincts.🙏

Well we need to keep in touch. I have some potential issues with my back that will probably need surgury and I want to do that before I consider a transplant. It sounds like a rough procedure and I’m so worn down. I just want a break. Hugs

Hi Kim - Are they going to do a clonoSEQ test of your BMB?
If not, call them to find someone who will get it tested. It’s the most sensitive testing method available

Hi Kim! My husband and I both have MM. He was diagnosed in November of 2020 and I in November of 2021. He had the SCT and is doing fine and in remission. It was very, very, tough on him and he has one of the highest pain tolerances I've ever seen. That being said he also went down in the record books as a special case because they could not figure out what was going on. He was extremely bloated, would not eat, had rash all over his body. He was in hospital 3 weeks, came home a week and then back to another hospital for a week and then transferred back to University of Nebraska Medical Center where he had the SCT. He was there another week and finally they gave him some steroids and he recovered. Needless to say just watching him when I was diagnosed I immediately said there was no way I was doing that. He had no health problems whatsoever and I had several underlying conditions. Had I been diagnosed first I think I would have just did what the doctors said. I have been studying and reading so much about MM and the transplant and I stuck to my guns for the longest time. Then they "talked me into it". From all I read I knew it was the best route to take but I also had this feeling that God put us both in this position for some sort of glorious unfolding that we will maybe not know on this side of heaven and I thought that God was telling me that what ever my decision it was the one that was correct and to trust in my heart and prayers. It is so rare for us to have the same thing. We are not blood relatives and the only thing we have in common is we live in the same house. I honestly though the IMF would be at our front door wanting to study us and figure out how we got it. We are farmers, yes but we had the University of Nebraska and UNMC come out and check things over. We have reverse osmosis, radon remover, had our vents cleaned, did all kinds of soil and water samples. Anyway I did decide to go through the workup before SCT. The night before I was to go I ended up in the ER with a bowel obstruction. I won't go into all the details but I thought again. Maybe I wasn't supposed to do this. I did go through the work ups eventually and my bone marrow came back with undetectable from 90% when diagnosed. I still have .28% M Protein in my blood. I just don't feel I am ready with this obstruction. I have been bloated and they can't seem to figure out what caused the obstruction.