Can Anyone Explain Why Some Drs Only “watch” MGUS Patients And Others Do Further Testing? | MyMyelomaTeam

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Can Anyone Explain Why Some Drs Only “watch” MGUS Patients And Others Do Further Testing?
A MyMyelomaTeam Member asked a question 💭

I’m recently dx w/MGUS. My dr dismissed my back pain, didn’t ask if I had any questions, explained what MGUS was and told me to have labs redone in 6 months. I feel left in the dark. I knew what MGUS and myeloma were by doing a lot of research before appt. I had questions and have no answers. Anyone have suggestions on what I should do? My family questions why no further tests were done. Since I’m new to this I don’t know if this is the norm. Thank you.

posted April 30, 2022
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A MyMyelomaTeam Member

I think I would get a second opinion and see what they say. I went from SM to Myeloma in 3 months time.

posted May 4, 2022
A MyMyelomaTeam Member

You need pain management / meds. It is impossible to do the things needed to fight this disease, and have any quality of life if you are in constant pain. My team's plan of action was; 1) prevent kidney failure, 2) manage the pain, 3) attack the MM to get it to remission.

posted May 18, 2022
A MyMyelomaTeam Member

I would see a Myeloma Oncologist. I have seeing one since my diagnosis 24 years ago.

posted May 6, 2022
A MyMyelomaTeam Member

Thank you Michelle. My family thinks I should get a second opinion also. But my brother who is a GP dr said another dr will do/say the same thing. So I’ve been torn about what to do. You’re input helps.

posted May 4, 2022

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