I have been having so much pain in my ribs, lower back, joints, long bones. In addition I have seen foamy urine and painful kidneys, fatigue. I have done CBC and CMP and look normal.. total protein is within range. Dr also sent me a free lite chain test which come with a normal ratio 1.08, is valid to say that the concentrations of those lite chains where in the low range level with lambda being just slightly under the lower normal level. But thing is bone pain is so profound and kidneys are… read more
Thank you Donna for your kind comments. Renal function numbers are winthin range; I don’t have a diagnostic and I have been doing all these. I thank you for your help
Donna, do you get IgG infusions? Medicare just turned down payment for my infusions. Hopefully my work-related health insurance will pick it up or at least some of it.
Some people with MGUS, have excess monoclonal light chains in their urine. A 24-hour urine is probably a good idea. You will need a BMB and imaging to diagnose myeloma. Is your kidney function way off??
Hi Diferi27, welcome to the team. We are glad you joined us. I was diagnosed with IgG lambda type myeloma, with high-risk genetics, January 2017. I had a stem cell transplant December 2017. I am currently on Darzalex Faspro, Pomalyst and dexamethasone. I am doing well.
I think it is important to know what type of myeloma you have. The different types show different presentations. Please post your MM Story: Date of diagnosis, Stage of Myeloma at Diagnosis, type of myeloma and treatment. We are looking forward to getting to know you.
The International Myeloma Foundation, The Multiple Myeloma Research Foundation and Healthtree.org (Health Tree University) and Myeloma Crowd are great places to learn about myeloma. Getting a great myeloma specialist is recommended with this disease.
Hoping you find us informative and supportive. I have added you to my team.
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