Cygnus, I had to look this up, because it is not an abnormality that I hear about a lot. It does say that it occurs in younger patients, which you are. It does indicate that you might have a less favorable outcome. I must say I went through this when I was diagnosed with P53/17p deletion. Thought I had 18 months😥.I still hear that 17p deletion people don't do well.
But Dr. Lonial at Emory says that higher risk patients become standard risk patients after a couple of years of aggressive treatment and maintenance.
You can Google him.
You do need a good myeloma Specialist, but with the right treatment l think you will be able to live a normal life expectancy.
That is if the world situation doesn't keep getting crazier 💪🙏💜💕👍💗

Thanks Colleen. I sent her a card today. I hope she is able to read some posts even💕

DonnaAndrew, been praying for Marcia. My heart goes out to her. Please let her know she’s got a huge team praying for her! Also, ThankYou! You’re doing a fabulous job with MyMyelomaTeam organization, connecting & providing info! Have a wonderful week! ❤️

Patty, I talked to her daughter Jamie on messenger on Tuesday. You can click on my picture and find the post on my page. She was not doing well on Tuesday. I haven't heard anything since. 😥

Donna, I have not seen any posts from Marcia lately and I understand you are filling in for her. Is she okay? I'm praying she is doing better.