I Have MM, 2 Yrs Post Transplant, MRD Negative But I’m Still Struggling With Fatigue On A Daily Basis. Is It MM Or Something Else? | MyMyelomaTeam

Connect with others who understand.

sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
I Have MM, 2 Yrs Post Transplant, MRD Negative But I’m Still Struggling With Fatigue On A Daily Basis. Is It MM Or Something Else?
A MyMyelomaTeam Member asked a question 💭

The only treatment I’m on is zometa (I’ve read that fatigue can be a side effect of zometa). I’m getting the clear impression from my doctor that the fatigue is either in my head or caused by something other than MM since I’m in remission.

I realize I’m fortunate to not have worse side effects (pain, etc.), but I’m only 61 and am struggling to stay physically active. I do exercise pretty hard 3-4 times a week, but it takes every ounce of energy I have to get the motivation up to do that. I… read more

posted January 11, 2021
View reactions
A MyMyelomaTeam Member

Hello Jsingletary,

I too have MM, I was diagnosed in 2015, I'm 54 yrs old. Had a transplant and currently receive chemo twice a month due to relapse last year.
I'm tired too! I still work full time but it wears me out, I'm afraid if I don't keep pushing my quality of life will suffer. I still have a good life other than being tired.
My advice is to eat well and keep active, ask your med team for advice.
Seems like there is a lot of old information online, your team is likely the best source of good info IMO.
My team provided a web site with good info (per my team), it is Nccn.org, have a look, I have not looked into much but I will.

Talk care,

Joe

posted January 11, 2021
A MyMyelomaTeam Member

Jsingletary
Probably anemic. That was my biggest problem. I still get very tired but my prognosis is low so won’t complain. Please mention to your doctor.

posted January 11, 2021
A MyMyelomaTeam Member

I really love my water aerobics classes.... it feels soooooo good and it is a wonderful social time as well. Now you will be tired at first because water exercising on the water is tiring, but give yourself some time.... your body will thank you for it. It makes all the difference in the world for me. Best wishes 🙏😊

posted January 26, 2021
A MyMyelomaTeam Member

I am 62 and no longer work I was diagnosed July 2019 Had stem cell harvest and chemo It took me over a year to be able to walk without help But I still suffer from fatigue If I do to much at a time it will make me really tried for a day or two I want to ask the doctor about this Because I feel like it’s affecting my social life For a while I was taking Iron because it was low But it’s back to normal now. I don’t like just sitting around all the time.Sometimes I wonder if I would push through this if I could get over the fatigue I had a rod placed in my leg and I pretty much sat around for a year Because the bone took forever to heal I had to get a bone stimulator to help heal the bone. I here so many of you talking about walking two to five miles I would love to be able to do this to I always loved to walk Any Suggestions would be Appreciated I go to the doctor on the 25th I plan on talking to him about it. I also was wondering if anyone on our team has had any trouble with their teeth I was at the dentist and had X-rays and my teeth cleaned and was told that I have 17 bad teeth I have always taken care of my teeth went to the dentist twice a year I just can’t understand what happened to my teeth I have to go see a surgeon about pulling my teeth I’m so upset about this I never in a million years would of thought I would ever have to have my teeth pulled

posted January 18, 2021
A MyMyelomaTeam Member

Thank you for your kind responses. Although I had to retire in May, I'm still staying physically active. As soon as I get my COVID vaccine, I hope to get out more... go see family out of state, etc.

posted January 12, 2021

Related content

View All
SCT - Relapse
A MyMyelomaTeam Member asked a question 💭
Life After Stem Cell Transplant?
A MyMyelomaTeam Member asked a question 💭
I'm Interested To Find Out How Many People On This Forum Have Been Deemed Their Cancer Is In Remission And Are - No Longer Taking MM Meds ?
A MyMyelomaTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in