I was switched to Arredia. I had flu like symptoms from zometa. Everyone is different.
Isn't that the I.V that helps protect your bones, during MM treatment? It's been a while. I guess it had bad negative reaction I would remember. I'll have to look at my journal from a few years ago… read more
Told my hematologists about all the pain I’ve been having in random places and his suggestion was a steroid taper? Anyone else take a steroid for bone pain?
I’m on maintenance of 5Mg, my pain will come in my ankle, hip or back through the end of my cycle, I will take Dexamethazone 4mg for a couple of days that seems to work for me
I was given Zometa for the first time but the drip rate was 8 minutes. Upon reading about zometa, the minimum time states 15 minutes. Anyway, the next morning I could not breath it felt like I had a collapsed lung and I hurt all over. I went to the ED and they assured me I was getting air, they took a CAT scan and xrays of my lungs with nothing to show. The ED Dr called the infusion center and he was told that sometimes people do have a reaction to the first time zometa treatment. He was… read more
Lesley, I'm not sure but, did the clinic put in the right code for your Zometa? It should be covered since you have myeloma 😏
My test in a month shows an increase on IGA 1800 to 2130. I’m not on meds yet. Also slightly anemic with a sed rate of 131 since Nov. I’m a lambda free light chain with a 1q which puts me in high risk. One lyric lesion in L5 vertebrae with a plasmacytome in same location. Not on meds yet. I’m so conflicted about the potential side effects that velcade and zomenta may cause on me. Also, about future sct? I have a 1000 questions.
I am IGA Kappa
I am waiting to see a specialist. I need to know what symptoms are common with MM besides the back pain and fatigue?
I had pain in my hips and one arm which broke lifting a case of 12 pop and was diagnosed from there
I went to a psychiatrist. My myeloma Specialist sent me. I was driving them crazy I'm sure😏
Thank you. This is all so confusing and scary . I was hoping to hear of anyone who had positive remarks.
I don't have any new breaks/fractures. I have one fracture of the L1 which happened eight years before my diagnosis. So far so good.