I,m very interested in clinical trials as Car-T cell immunotherapy for MM patients and also for Dendritic cell Therapy
I am currently in clinical trial S1803 and just started cycle 4. the study is for Post SCT maintenance therapy using the gold standard Lenalidomide vs Lenalidomide and Daratumumab/rHuPH20. It just… read more
Larry I am sending you lots of hugs, stay strong and well.
I saw a trial in Texas that involved Tumeric injections Is anyone familiar with where that is?
I'd be interested in the results.
I'd like to know how you made the decision to stop the MM Meds.
Was it your choice or doctor recommended - any details would be great.
I'm now MRD Negative. My Doc has placed me on MM Meds holiday. Now with the Jan 2022 Report about MRD-SURE, I plan to stay in Labs Monitoring Mode with no MM Meds and only add back Revlimid, if a future Labs indicates the need. Keeping my fingers crossed.
MRD-SURE Link:
https://www.cancernetwork.com/view/mrd-adapted-...
Thanks,
Larry2
just as I think of stopping maintenance my ANC dropped to 1..1
lucky me
Unfortunately, after my SCT in Dec 2022, the MM has relapsed. It only took 10 months before it started to show up in blood tests. I had a bone marrow biopsy and the plasma cell percentage has now doubled from the value when I was initially diagnosed. So I'm curious to know if others have relapsed after a SCT and what was the next method of treatment used
We are looking to get me on Car-T cell therapy, but I do not yet qualify based on the number of refractory treatments (drugs that did not… read more
I hope things go well for you
I just discovered I am ultra high risk smoldering MM due to having chromosome abnormalities 1q21, 1q22, and q32. It makes me less likely to benefit from treatment. Looking for best way to deal with it. ANyone have any experience?
I think they can as long as the trial guidelines are followed
@A MyMyelomaTeam Member Having high IgA, your question interested me enough to look it up. Here's a link to an article although I'll freely admit I understand about 10% of it at best. Yes, there are… read more
Jodi, what was the problem? Just curious ! I had no problems except for being bored for 21 days!🤷🏼
At 6 weeks of induction my IgG, and IgM (immune levels) were still normal and my very high IgA had returned to normal. As they continued to with induction, for 12 weeks total, my Ig levels all went to very low. Asking about it, I was told the MM Meds were hard at work, attacking what was left of my immune system.
Now that I'm in Complete Remission and no longer taking MM Meds, I'm hopeful that my immune system might recover to normal. My Doc doesn't expect that to be the case. I asked about… read more
That's great to hear. I'm starting my 1st iggs infusion Monday. Any side effects from infusion? Getting sinus infections
Absolutely miraculous news so happy for you God is Great and Greatly to be Praised!!!!