is anyone involved in any kind of investigational or trial treatments with immuno therapy drugs and myeloma | MyMyelomaTeam

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Top 10 Search Results for "is anyone involved in any kind of investigational or trial treatments with immuno therapy drugs"

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Clinical Trials
A MyMyelomaTeam Member asked a question 💭

I,m very interested in clinical trials as Car-T cell immunotherapy for MM patients and also for Dendritic cell Therapy

A MyMyelomaTeam Member

I am currently in clinical trial S1803 and just started cycle 4. the study is for Post SCT maintenance therapy using the gold standard Lenalidomide vs Lenalidomide and Daratumumab/rHuPH20. It just… read more

Hi There Can Anyone Explain The CAR T Cells Therapy? I Need To Know………
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Larry I am sending you lots of hugs, stay strong and well.

Clinical Trials For SMM
A MyMyelomaTeam Member asked a question 💭

I saw a trial in Texas that involved Tumeric injections Is anyone familiar with where that is?

A MyMyelomaTeam Member

I'd be interested in the results.

I'm Interested To Find Out How Many People On This Forum Have Been Deemed Their Cancer Is In Remission And Are - No Longer Taking MM Meds ?
A MyMyelomaTeam Member asked a question 💭

I'd like to know how you made the decision to stop the MM Meds.
Was it your choice or doctor recommended - any details would be great.

I'm now MRD Negative. My Doc has placed me on MM Meds holiday. Now with the Jan 2022 Report about MRD-SURE, I plan to stay in Labs Monitoring Mode with no MM Meds and only add back Revlimid, if a future Labs indicates the need. Keeping my fingers crossed.

MRD-SURE Link:
https://www.cancernetwork.com/view/mrd-adapted-...

Thanks,
Larry2

A MyMyelomaTeam Member

just as I think of stopping maintenance my ANC dropped to 1..1
lucky me

What Treatment Options Have You Used For Relapsing MM?
A MyMyelomaTeam Member asked a question 💭

Unfortunately, after my SCT in Dec 2022, the MM has relapsed. It only took 10 months before it started to show up in blood tests. I had a bone marrow biopsy and the plasma cell percentage has now doubled from the value when I was initially diagnosed. So I'm curious to know if others have relapsed after a SCT and what was the next method of treatment used
We are looking to get me on Car-T cell therapy, but I do not yet qualify based on the number of refractory treatments (drugs that did not… read more

A MyMyelomaTeam Member

I hope things go well for you

Ultra High-risk Smoldering Multiple Myeloma Diagnosis.
A MyMyelomaTeam Member asked a question 💭

I just discovered I am ultra high risk smoldering MM due to having chromosome abnormalities 1q21, 1q22, and q32. It makes me less likely to benefit from treatment. Looking for best way to deal with it. ANyone have any experience?

A MyMyelomaTeam Member

I think they can as long as the trial guidelines are followed

Does Anyone Have Smoldering Myeloma?are You Doing Treatment?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

@A MyMyelomaTeam Member Having high IgA, your question interested me enough to look it up. Here's a link to an article although I'll freely admit I understand about 10% of it at best. Yes, there are… read more

I Have Stage 3 MM And Choose Not To Do SCT. What Are My Options?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Jodi, what was the problem? Just curious ! I had no problems except for being bored for 21 days!🤷🏼

Anyone Having Any Luck Getting Their Ig Levels To Go From Low (immune Compromised), Back To Normal ?
A MyMyelomaTeam Member asked a question 💭

At 6 weeks of induction my IgG, and IgM (immune levels) were still normal and my very high IgA had returned to normal. As they continued to with induction, for 12 weeks total, my Ig levels all went to very low. Asking about it, I was told the MM Meds were hard at work, attacking what was left of my immune system.

Now that I'm in Complete Remission and no longer taking MM Meds, I'm hopeful that my immune system might recover to normal. My Doc doesn't expect that to be the case. I asked about… read more

A MyMyelomaTeam Member

That's great to hear. I'm starting my 1st iggs infusion Monday. Any side effects from infusion? Getting sinus infections

Is Multiple Myeloma Curable?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Absolutely miraculous news so happy for you God is Great and Greatly to be Praised!!!!